I'm not gonna lie ... I'm really new to this whole blogging thing so as I get figure stuff out ... I'll expand ... For example I have no idea how to change my About Me so it doesnt go to my Google+ profile, cuz honestly I dont like it & it sucks. So until I figure it out, here's a little bit about me and my family
The Tempest
Story
My husband & I have been married for almost 6 years. During which
time, he has had several career changes while attempting to find a good income
source for our family. Unable to do so, we had to file for bankruptcy shortly
after our first child, Tempest was born.
When Tempest was born she refused to eat & was placed on
fluids through an IV. She underwent 3 days of testing in the NICU. She was
diagnosed with RH Disease & On her 5th day of life she received
a complete platelet transfusion. Her stay in the NICU lasted for 9 days. Since
her delivery was a C-Section, it was rough going back & forth from the
hospital to be there for her. While she was there, her Doctors also diagnosed her
with Turner’s Syndrome, Which is a Chromosomal Syndrome causing Tempest to be
petite, among other physical disabilities, has 3 major heart conditions, a
bicuspid aortic valve, a Patent Foramen Ovule, & Cardiomyopathy & was
finally diagnosed with GERD which causes her to throw up often. Due to all of
her medical issues & frequent doctor appointments I was unable to go back
to work.
Even though Troy has a decent job, unfortunately it does not
offer insurance. Due to this we have been paying out of Pocket for all of her
doctor visits & prescriptions. Despite preventative measures, not too long
after Tempest was born, I found out I was pregnant. Because this was a surprise
amongst all of Tempest’s medical issues, we were unable to afford certain
necessities such as a second crib & additional bedding for the new baby. 361 days after Tempest was born, I had Cole
via a second C-section. Cole is a completely healthy baby boy. Currently they
both take turns between sleeping in the Crib & the pack & play portable
crib.
Our house was included in the bankruptcy and because of this we were
unable to remain in our house for too long, resulting in us moving into an
apartment only 3 months after Cole was born. We had to cut off TV services
& home phone services as well. To entertain the children and to maintain
our sanity, we use Netflix, iTunes and an old computer hooked up to the TV to
entertain them with endless repeats of Pocoyo, Bubble Guppies and the Mickey
Mouse Clubhouse while we watch something else on a different computer. Recently,
our first and only TV as a dating and married couple, stopped working & our recent Tax return went to buying a new one.
Due to the stress of the new baby & the move, Tempest began
to have development problems. For which we are state required to have
specialists work with her on a weekly basis..
Although I would love to go back to work, we wouldn’t be able to
afford a nanny or special needs day care because of Tempest’s strict schedule
on all her health needs.
Tempest was Born March 23 2010, But her arrival was not easy one.
Over 12 hours of labor where her heart rate went down dramatically during every
contraction resulting in an emergency C-Section. The nursery was kind enough to
take her for a couple of hours so her Mommy and Daddy could rest. It was at
this time she started refusing to eat. After several tests and 24 hours of held
breaths, tempest was diagnosed with RH Disease, 3 major heart conditions, a
bicuspid aortic valve, a Patent Foramen Ovule, & Cardiomyopathy, And a Genetic
Disorder called Turner's Syndrome. She received a complete platelet transfusion
at only 4 days old. And Spent her First 10 Days in the NICU.
At one month old she was diagnosed wit GERD which we are still
having issues getting under control.
So that's pretty much it in a nut shell. I'll be blogging the Minions milestones along with Anything else I do during the day. Recipes, Photos I find amusing, rants about whatever I have a strong opinion on, vacations, outings ... uh .... and whatever else I feel like blogging ^_^
*yawn* Ok I'm off to bed ... Gotta get that beauty sleep
G'night
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